My 10 Bits of Advice for Others on the Cancer Journey

Over the course of my experience with Burkitt’s lymphoma, I’ve learned so much about the healthcare system, about recovery, and, most importantly, about myself. I want to share some of the lessons and strategies that have been most helpful to me, in the hope that they might support you or someone you care about.

1. Check Your Insurance Policies

Having the right insurance coverage is essential. Make sure you have a good-quality health insurance plan to cover treatments and medical expenses. Additionally, disability insurance can provide financial support if you’re unable to work, and critical illness insurance can help cover the extra costs that come with a serious diagnosis. These plans can offer peace of mind and financial stability during challenging times. Life insurance is also very important. If you get diagnosed with a serious illness, you will probably never again qualify for a new life insurance policy. And as you get older, policies get more expensive. So if you don’t have a policy, and you have people who depend on you financially, then get life & disability insurance now. Unless you are very, very wealthy, get medical insurance now.

2. Be Your Own Advocate

One of the most valuable lessons I’ve learned is the importance of advocating for yourself. Ask questions, seek clarification, and don’t be afraid to push for second opinions if something doesn’t sit right. In fact, if time permits, always get second and third opinions. No one knows your body better than you, and being an active participant in your care can make all the difference. Remember that doctors and nurses make mistakes just like anyone else does. Keep your eye out.

3. Celebrate Small Victories

Recovery is rarely linear. It’s easy to get frustrated when progress feels slow, but every step forward matters. For me, even simple achievements—like completing a walk or feeling less fatigued—were worth celebrating. These small victories add up over time and build momentum. One example of a victory for me was, after weeks of not being able to walk, I used a walker to take my first steps out of my hospital bed. When I was younger, I was able to do squats with 315 lbs on my shoulders. Those first 5 steps with a walker were just as difficult emotionally and physically. Nonetheless, it was a huge success.

4. Draw on Your Support System

You don’t have to face this journey alone. Family, friends, and even online communities can be incredible sources of strength. Whether it’s someone driving you to appointments or just checking in with a kind word, their support is invaluable. Don’t hesitate to let people help—they want to.

5. Track Your Journey

Keeping a journal was a game-changer for me. I logged symptoms, energy levels, and even emotions, which helped me see patterns and communicate more effectively with my doctors. It also gave me a tangible way to reflect on how far I’d come, especially on tough days.

6. Take Care of Your Body

Hydration, proper nutrition, and rest are critical during treatment and recovery. But don’t stop there—gentle exercise like walking can do wonders for both your physical and mental health. Start small, and listen to your body.

7. Be Patient With Yourself

There were days when I wanted to push myself harder, but I had to learn to respect my limits. Healing takes time, and it’s okay to not feel 100% every day. Give yourself grace and focus on what you can do, rather than what you can’t.

8. Practice Gratitude

Even in the hardest moments, I found that gratitude could shift my perspective. It might be something as simple as a kind gesture from a friend, a good meal, or a clear scan. Gratitude doesn’t erase the challenges, but it does help balance them with moments of light. One example was when I could no longer eat or drink, I was very appreciative of the PEG tube that allowed nutritional supplements to pour right into my stomach. Also it allowed me to “eat” even when I was really sick from chemo.

9. Tend to Your Emotional Health

The emotional side of a cancer diagnosis is just as important as the physical. Don’t be afraid to seek therapy, join a support group, or talk with others who’ve been through similar experiences. You’re not alone, and there’s no shame in asking for help. It’s equally important to take a moment to celebrate yourself. Try writing a note to yourself as if you were an outsider, highlighting your achievements and recognizing all the milestones—big or small—that deserve congratulations.

10. Look to the Future

Even after treatment, staying vigilant about follow-ups and maintaining a healthy lifestyle is key. For me, this has meant embracing exercise, eating well, and finding joy in the little things. Recovery doesn’t stop when treatment ends—it’s an ongoing commitment to yourself. When you were feeling in “full crisis mode” what did you promise yourself you’d do differently next time? Write that down so you don’t forget.

Bonus: 11. Don’t Wear a Hospital Gown

Unless you absolutely have to wear a hospital gown while in the hospital, don’t wear one. Dignity is critical when you are ill, and a gown provides none. Wear your favorite, comfortable clothes while doing hospital time. I wore sweat bottoms and a t-shirt. My sisters brought me really fancy sweat outfits, which was nice too.

Bonus: 12. Hope is Powerful

Finally, never underestimate the power of hope. Every step forward, no matter how small, brings you closer to the life you want to rebuild. Surround yourself with positivity, focus on what you can control, and trust that brighter days are ahead.

I hope these insights help you as much as they’ve helped me. Remember: you are stronger than you realize, and you are never alone in this journey.